Nollvision cancer är stolta att vara en del av Community 365 – European Cancer Organisation

Ebba Hallersjö träffade Hult Mike Morrissey, Chief Executive, European Cancer Organisation & President, European Society of Association Executives, på EU Beating Cancer Plan and the EU Cancer Mission konferensen på KI och pratade vidare om hur Nollvision cancer kan bidra till the Focused Topic Network of the European Cancer Organisation som är en del av Community 365.

Läs mer om Community 365 här!

Community 365 – European Cancer Organisation

Networks of the European Cancer Organisation. Community 365 provide ideas, guidance, practical support and resources for our work in convening stakeholders and building consensus in the European cancer community.

Policies of the European Cancer Organisation are agreed by our Board after consultation with our Member Societies and Patient Advisory Committee. Community 365 contributors do not have a decision-making role in our policy work. Read more about our policy approval pathway here.   Community 365 also has additional not-for-profit organisations as supporters of our Mission & VisionStrategy and Focused Topic Networks.

EU Beating Cancer Plan Event

”We welcomed our colleagues and friends from all over Europe to Stockholm the 31st of January. We will discuss how to most effectively join forces to ensure an effective and equitable implementation of the Beating Cancer Plan and the Cancer Mission all over Europe and beyond to reduce the burden of cancer on our societies”

Cancer remains a major scourge on European Society. In 2020, 2.7 million people in the European Union were diagnosed with the condition, and 1.3 million people lost their lives to it.

In February 2021, the European Commission launched Europe’s Beating Cancer Plan. Together with the EU Mission Cancer, it represents a concerted effort across Europe to reduce cancer incidence and mortality and improve the quality of life of its citizens. Since its launch, several milestones have been achieved, most recently the adoption of revised EU Council recommendations on cancer screening. Even considering that health is a competence of Member States, the European cancer plan presents the opportunity to work in a coordinated and synergetic way to tackle the burden of the condition, by offering a framework to support Member

States in their own national cancer control plan implementation. It can also help create sufficient critical mass across the EU to create synergies, enable the sharing of best practices and foster greater equity of access to high quality prevention and care across the EU.

Here you can view the Plenary session and Break-out session 2

Nu finns rapporten från European Cancer Summit 2022!

Nu har rapporten från EU Cancer Summit 2022 kommit!

Ebba Hallersjö Hult från Nollvision cancer var på plats under seminariet och deltog i panelen Bringing Digital Transformation of Cancer Care to Frution:

Som anges i ECO-konsensusdokumentet, No Stopping Us Now!, är fördelarna med digital teknik för att förbättra cancervården tydliga. Ändå kvarstår frustration med en uppfattning om att framstegen går långsammare än hoppats inom viktiga områden som internationellt onkologisk datasamarbete och tillräcklig förberedelse av hälsosystem, inklusive onkologipersonal, för större antagande och upptagande inom områden som artificiell intelligens.

Denna session tog perspektiv från nationella ministerier, internationella onkologiledare och EU-beslutsfattare om det aktuella läget och verkligheten inom digital förändringshantering inom onkologin, med hänvisning till nuvarande politiska prioriteringar såsom inrättandet av ett europeiskt hälsodatautrymme.

Med Digital Health Network Network Co-Chairs Carlo Catalano och Wim Oyen, samt dessa talare:

  • Fulvia Raffaelli, Head of Digital Health, DG SANTE
  • Tobias Silberzahn, Partner, McKinsey & Company
  • Laurence Court, Director, The Radiation Planning Assistant Project, Division of Radiation Oncology, The University of Texas MD Anderson Cancer Centre
  • Denis Costello, Executive Director, CML Advocates Network
  • Ebba Hallersjö Hult, Co-founder and Head of Vision Zero Cancer
  • Nina Linder, Associate Professor, University of Helsinki, Senior Scientist, Institute for Molecular Medicine Finland
  • Angel Martín, Senior Director, Digital Health and Taxation Advocacy EMEA, Janssen

Här kan du titta på de inspelade sessionerna>>>

Lyckat nordiskt möte under OECI Oncology Days i Valencia

I juni deltog Nollvision cancer på OECI Oncology Days i Valencia. Europeiska cancerinstitut samlades under tre dagar för att utbyta erfarenheter och dela goda exempel på hur man arbetar med cancervård och forskning.

Från Sverige presenterade Yvonne Wengström och Eva Jolly med flera hur Karolinska arbetar med kontaktsjuksköterskor. Mycket uppskattade föredrag som genererade många som var intresserade av att veta mer. 

Under konferensen hölls ett nordiskt möte där Ebba Hallersjö Hult presenterade Nollvision cancer och Test Bed Sweden for Precision Health in Cancer. Åslaug Helland berättade om den norska Impress-studien och alla cancer centres delade fler goda exempel på hur man arbetar. Avslutningsvis konstaterades att utbytet bör fortsätta och en nordisk task force ska bildas för att strukturera upp detta.

Läs mer om OECI här.

Nollvision cancer i nytt globalt lungcancernätverk

Ebba Hallersjö Hult från Nollvision cancer har blivit medlem i det nyligen lanserade Lung Cancer Policy Network, en global sammanslutning av experter med målet att göra lungcancer till en politiskt prioriterad fråga över hela världen. Medlemmar i nätverket inkluderar läkare, forskare, patientorganisationer och branschexperter.

Huvudfokus är först och främst lungcancerscreening. Nätverket har nästan 50 medlemmar från hela världen och fortsätter att växa. Snart lanseras den första rapporten som kommer att beskriva viktiga lärdomar från implementeringen av lungcancerscreening runt om i världen.

Läs mer på nätverkets hemsida: https://www.lungcancerpolicynetwork.com/

Vision Zero Cancer & OECD OPSI: workshop on mission driven innovation around personalised medicine

On 7–8th of October, Vision Zero Cancer together with OECD Observatory of Public Sector Innovation met together with around 60 participants, speakers, and panellists for a Mission-oriented Innovation Bootcamp – a journey into the intersection of mission-oriented innovation and personalised medicine. The purpose of the workshop was to introduce the concept mission-oriented innovation and how to use it for working together to make personalised medicine available for all cancer patients.

The focus of the two-day bootcamp: A journey into the crossing of mission-oriented innovation and personalised medicine, was to introduce the concept, collecting perspectives on how to make the mission come to life, to decide who needs to do what and share how to activate the ecosystem and synergies across different innovations. In the digital workshop, the participants had the opportunity to ask questions, work together and learn from speakers who transparently shared their experiences and hinderances on the topic.

Ebba Hallersjö Hult, head of Vision Zero Cancer, highlighted how important it is to involve the whole healthcare system. OECD and UCL IIPP showed that shared missions with combined strategy, coordination, and implementation to tackle global complex challenges works and pointed to the example of developing a global vaccine for Covid-19.

Many international examples where shared. Health Holland are working on a mission for better dementia care, where an important mechanism has been to connect the overall mission with the work in so called Field Labs. Germany’s mission-oriented work with their Decade against cancer is a valuable example of taking a more patient-centred approach through webinars, events, and panels to include the public. The UK, Camden borough, is working on a mission for combatting child poverty demonstrating a central mapping tool for getting the big picture of all the activities that needs to happen simultaneously to achieve a mission. Australia’s work on Genomics Health Futures mission showed success factors in setting up inclusive expert panels to set the mission and its implementation. Together this went to show how important it is to try different ways of working towards missions and sharing experiences along the way, across sectors and between different areas of societal challenges. 

The importance of communication and trust was addressed and highlighted during the panel discussion. The panel also discussed the value of working in different partnership models and broadening the perspectives with unusual players, always factoring in the individuals behind the topics discussed and that human behaviour is one of the crucial factors determining if we move towards the mission.

– The pandemic has tested the healthcare system around the world but has also created an opportunity to redefine cancer care. We are not going back to the past. We are going to add a new normal and it is a great opportunity to define that new normal together, says Ebba Hallersjö Hult.

In February 2021, the European Commission presented Europe’s Beating Cancer Plan. With new technologies, research and innovation as the starting point, the Cancer Plan sets out a new EU approach to cancer prevention, treatment, and care. Personalised Medicine represents a paradigm shift in health and requires the coordinated action of multiple stakeholders. Vision Zero Cancer believes that a Mission-based approach can be successfully applied to the implementation of personalised medicine and the outcome of workshops held during the bootcamp renders this belief.

We look forward to further exchanging valuable lessons on how missions can tackle wide societal challenges in innovative ways and to collaborate across sectors to achieve a transformation around cancer so that it is eliminated as a life-threatening disease for future generations, working towards the vision that no one should die from cancer and more people should live longer and better.

Participants:

The team co-hosting the event together with Vision Zero Cancer: OECD Observatory of Public Sector Innovation (OPSI). Chiara Bleckenwegner, Angela Hanson, Piret Tõnurist, Philippe Larrue, Rebecca Santos, Luca Kuhn von Burgsdorff and Davide Albeggiani.

Sharing mission-cases: Elspeth Langford and Saraid Billiards with the Genomics Health Futures Mission, Hubert Misslisch with The National Decade against Cancer, Kirsten van Spronsen from Health-Holland and Weronica Sarnowska with Camden Council.

Panelists: Anders Brinne (Vinnova), Bernd Stowasser, Bettina Ryll (Melanoma Patient Network Europe), Hans Hägglund (Regionalt cancercentrum), Henry L. Li (UCL Institute for Innovation and Public Purpose), Richard Rosenquist Brandell (Genomic Medicine Sweden), Suzanne Håkansson (Astra Zeneca), Terje Peetso (The North Estonia Medical Centre) and Ulrik Ringborg (The European Academy of Cancer Sciences).

Det här är vi

Nollvision cancer ska omvandla cancer från en dödlig till en botbar eller kronisk sjukdom.

Om Nollvision cancer
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Nyfiken på tidigare möten och workshops?

Läs sammanställningar från tidigare workshops som Nollvision cancer har anordnat för att att omvandla cancer från en dödlig till en botbar eller kronisk sjukdom.

Möten och workshops
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Knowledge and experience exchange with Sweden: Early detection of lung cancer in never-smokers

Lung cancer accounts for one in five deaths worldwide. The past few years have seen considerable advances in treatment for lung cancer, yet the prognosis remains low. Lung cancer causes symptoms that come up late in the course of the disease and assessments are complicated. This means that half of the patients have a spread disease at diagnosis.

Early detection and prevention are the best strategies to improve the treatment outcome or eliminate the disease. People who smoke or have smoked have the greatest risk of lung cancer, though lung cancer also increasingly occurs in people who have never smoked. Lung cancer in never-smokers is a global rising concern and there is a fast growing need to understand how never-smokers’ disease differs from that of smokers, and how to effectively prevent and diagnose it early.

Vision Zero Cancer therefore invited participants ranging from current leading researchers in the field and clinicians to patient representatives and the medical industry to share experience and discoveries on how to develop an effective preventive strategy and opportunities for screening.

The meeting held around 30 participants and keynote speaker was Dr. Pan-Chyr Yang (MD, PhD, Chair Professor at the National Taiwan University Hospital and Academician of Academia Sinica, Taiwan). Dr. Yang shared the findings of the Taiwan Lung Cancer Screening for Never-Smoker Trial (TALENT), a nationwide lung cancer low-dose CT screening study focused on never-smokers which also aims to develop an effective strategy for screening of lung cancer in never-smokers and establish a risk prediction model to identify high-risk population that may benefit from low-dose CT screening.  In Taiwan, lung cancer is the leading cause of cancer mortality, and 53% of those who have died of lung cancer were never-smokers. The US National Lung Cancer Screening Trial (NLCST) and the Dutch NELSON trials demonstrated that the use of low-dose CT is effective for lung cancer screening; however, most of the lung cancer screenings focused on heavy smokers.

Of the 12,011 individuals included in the trial, the prevalence of lung cancer was 3.2% and 2.0% in participants with and without lung cancer family history, respectively. As explained during the meeting by Dr. Yang, 96.5% of the detected patients were stage 0 or 1 and potentially curable by surgery. The study also demonstrated the high risk of family history, especially among participants with a first-degree family history of lung cancer.The meeting further contained a panel discussion where Andrew Kaufman (MD, Associate Professor, thoracic surgeon at Mount Sinai Hospital in New York City) Kersti Oselin (MD, PhD, Medical Oncologist, North-Estonian Regional Hospital Cancer Center) Marcela Ewing (MD, PhD, Specialist Oncology and General Medicine, Sahlgrenska Academy, Regional Lead Early Detection of Cancer, Confederation of Regional Cancer Centres) Mattias Johansson (PhD, Scientist, Genetic Epidemiology Group, International Agency for Research on Cancer (IARC), World Health Organization) and Mikael Johansson (MD, Associate Professor, Senior Consultant Oncology, Umeå University Hospital and Senior lecturer at Umeå University, Chair of the National Working Group for Lung Cancer Care) together with Dr. Pan-Chyr Yang elaborated their thoughts on the findings of the TALENT-study and how this relates to what they are facing in their current work.

Andrew Kaufman who is the leader of the never-smoking initiative at Mount Sinai Hospital, New York, reflected that caring for never-smoking lung cancer patients comes down to the intersection between epidemiology, biology, clinical capability, precision medicine, surgical care and all other clinical attributes available. He put emphasis on that it takes a multidisciplinary approach to look at the data and find out what is the substrate we are dealing with in terms of a clinical population, while also stating that for most cancers unfortunately the time for best intervention is at an asymptomatic time point. Dr. Kaufman continued by being hopeful that discussions like the one this meeting facilitated will shed light on and give direction to find the right thread to start pulling on to make a difference in the case of lung cancer. By learning from the important findings of Dr. Yangs work we will be able to provide ways to be smarter at identifying patients at risk yet also not increasing the costs of the inefficiency of care.

The various competent outlooks and insights presented by the panel gave a good transition to the last part of the meeting where Mattias Johansson from the Genetic Epidemiology Group at the WHO International Agency for Research on Cancer (IARC) presented a proof on concept study on the use of biomarkers to improve early detection and the possibilities this presents to detect more lung cancer patients in time. Medical oncologist Kersti Oselin from the North-Estonian Regional Hospital Cancer Center gave insights on AI for early detection and the prognostic significance of genomic markers in lung cancer recurrence. Rounding up the meeting from London Amied Shamaan, director within AI and clinical collaboration presented the work of a collaboration between Oxford University and GE Healthcare with other industry partners in a consortium that is formed around lung cancer screening and innovation and goes under the name of  The Integration and Analysis of Data using Artificial Intelligence to Improve Patient Outcomes with Thoracic Diseases (DART). The consortium has come together to be agile around the lung cancer screening process in the UK to provide innovation in technology and to be able to involve and better affect the patient population.

During the autumn follow-up meetings will be held to dig deeper into the common areas and challenges facing early detection of never smokers. Leveraging clearly on the consensus of the meeting around the need to gather across professions and sectors to build momentum around who and how to find never-smoking lung cancer patients at the right time. 

Watch the recording of the meeting.

Meeting agenda Följ länk

The purpose of this meeting was to share discoveries and experience on how to develop an effective preventive strategy.

Hur ser vi cancern snabbare?

Ju tidigare cancer upptäcks, desto större är chanserna att överleva. Med nya system och kunskaper kan vi fånga upp symptom tidigare och snabbare komma till behandling. Och får större chanser att nå nollvisionen.

Tidig upptäckt och diagnos
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Estonia-Sweden workshop on cancer – improving health outcomes through innovation and collaboration

The aim of Europe’s Beating Cancer Plan is to tackle the entire disease pathway. Over the coming years, it will focus on research and innovation, tap into the potential that digitalisation and new technologies offer, and mobilise financial instruments to support Member States. With its policy objectives, supported by ten flagship initiatives and multiple supporting actions, the Cancer Plan will help Member States turn the tide against cancer. Sweden and Estonia have decided to join forces in this endeavour.

On the 26th of May North Estonia Medical Centre Regionaal Haigla and Vision Zero Cancer arranged an interactive meeting to share experience and explore areas for collaboration in research and innovation to deliver on the mission of beating cancer. The meeting was focused around five key areas presented after the shared introduction by Dr. Terje Peetso (MD, Member of the Board at North Estonia Medical Centre) and Ebba Hallersjö Hult (Head of Vision Zero Cancer).

Bettina Ryll (MD, PhD, member of the Horizon Europe Mission Board for Cancer, Chair ESMO Patient Advocacy Group, Founder Melanoma Patient Network Europe) shared her thoughts on the emergence of A new era in cancer care in Europe followed by Professor Hans Hägglund (MD, Professor, National Cancer Coordinator, Chairman of the Federation of Regional Cancer centres, Chairman of Vision Zero Cancer) who painted the picture of the Swedish setting of 10 years with a national strategy – achievements and future outlook complemented by Dr. Vahur Valvere (MD, PhD, Director of Research and Development, North-Estonian Regional Hospital Cancer Center, Chairman of the Board of Estonian Cancer Society) giving the outlook of the Estonian National Cancer Control Plan for 2021-2030.

Mia Rajalin (PhD., lic. psychologist, Director of Studies, Region Stockholm, Member of the Board, the Swedish Lung Cancer Association and Vision Zero Cancer) member of the Vision Zero Cancer core-team and lung cancer patient gave her story of how the diagnosis became a driver for improving cancer care. The case of lung cancer was further elaborated by Dr. Simon Ekman (MD, PhD, Associate Professor, Senior Consultant, Department of Oncology-pathology, Karolinska University Hospital and Karolinska Institutet) and Dr. Kersti Oselin (MD, PhD, Medical Oncologist, North-Estonian Regional Hospital Cancer Center) sharing experiences from the Swedish Precision treatment of lung cancer at Karolinska Comprehensive Cancer Center and Estonian work with AI for early detection and prognostic significance of genomic markers in lung cancer recurrence.

Anu Planken (MD, PhD, Medical Oncologist, North-Estonian Regional Hospital Cancer Center) presented an Overview of the personalised oncology landscape in Estonia building on the promise of personalized medicine for cancer prevention, diagnosis and treatment.  Complementing this with the perspective of data and information-sharing Arvid Widenlou Nordmark (Coordinator National Quality Registries for Cancer, Confederation of Regional Cancer Centres) gave the Swedish view of how national quality registries are used to guide and evaluate clinical improvement efforts and introduced the The Patient Overview – an enabler for personalised medicine. Rounding up the group of speakers was Dr. Indrek Seire (MD, Surgical Oncologist, North-Estonian Regional Hospital Cancer Center) giving an oversight of the Estonian work with Structured health data and site-based databases in oncology. 

The meeting continued with the approximately 25 participants being split into breakout groups discussing the question of how we can leverage the promise of personalised medicine (PM) for our patients and societies? with the goal of both sharing knowledge and insights while strengthening possibilities for successful international collaborations.

The successful outcome of the meeting has led to a deepened collaboration within cancer care between Sweden and Estonia with planned visits and experience exchanges on site in Sweden during the autumn 2021 and in Estonia in the spring of 2022.  

Watch the recorded meeting.

Meeting agenda Följ länk

North Estonia Medical Centre Regionaal Haigla and the Swedish Innovation Milieu Vision Zero Cancer held an interactive meeting to share experiences and explore areas for collaboration in research and innovation to deliver on the mission of beating cancer.

Kunskap delas över gränser

Nollvision cancer anordnar och deltar i internationella möten för att utbyta kunskap och lära av varandras projekt, resultat och tankar.

Internationella aktiviteter
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Det här är vi

Nollvision cancer ska omvandla cancer från en dödlig till en botbar eller kronisk sjukdom.

Om Nollvision cancer
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Sweden-Russia experience exchange on lung cancer – accelerating innovation to improve survival and quality of life for people with lung cancer

Around 60 experts gathered during the virtual experience exchange between Sweden and Russia as part of a collaboration between the Association of Oncologists of Russia and Vision Zero cancer, aided by Business Sweden and the Embassy of Sweden to the Russian Federation.

A warm and shared welcome to the meeting was given by H.E. Malena Mård, Ambassador of Sweden to the Russian Federation, Mattias Lindgren, Swedish Trade Commissioner to the Russian Federation, Market Area Director Eurasia, Business Sweden, Professor Andrey Kaprin, MD, General Director of the National Medical Research Radiological Center of the Ministry of Health of the Russian Federation, President of the Association of Oncologists of Russia, and Ebba Hallersjö Hult, Head of Vision Zero Cancer. The scene for Cancer care in Russia and Sweden with particular focus on lung cancer was set by presentations from Professor Andrey Ryabov, MD, Deputy General Director of the National Medical Research Radiological Center of the Ministry of Health of the Russian Federation and Associate Professor Mikael Johansson, MD, Senior Consultant Oncology, Umeå University Hospital and Senior lecturer at Umeå University.

The presentations and following discussions centred around three key areas containing an impressive 25 expert speakers giving their view on (1) Prevention, Improved awareness and Education, (2) Early Detection and Screening and(3) Diagnostics, Treatment and Care.

Attached to this short overview is the full agenda (link).

The meeting has further underbuilt the coming memorandum of cooperation (MoC) between the National Medical Research Radiological Centre of the Ministry of Health of the Russian Federation (NMRRC), the Association of Oncologists of Russia (AOR) and Vision Zero Cancer as well as paved way for experience exchanges on site in Sweden and Russia. All to continue the common fight against cancer.

Meeting agenda Följ länk

The purpose of this meeting was to share knowledge and experience on how to improve early cancer diagnosis, outcomes and care for patients and to discuss potential new technologies for early lung cancer detection, including the implementation of targeted screening and precision diagnostics and treatment.

Kunskap delas över gränser

Nollvision cancer anordnar och deltar i internationella möten för att utbyta kunskap och lära av varandras projekt, resultat och tankar.

Fler internationella aktiviteter
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Det här är vi

Nollvision cancer ska omvandla cancer från en dödlig till en botbar eller kronisk sjukdom.

Om Nollvision cancer
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Lösningar i fokus på Sweden-India Health Talks 2020

Hur stärker vi cancervården och gör den mer motståndskraftig, särskilt i ljuset av de utmaningar som covid-19 ställt oss inför? Det diskuterades i ett rundabordssamtal under Sweden–India Health Talks 2020 den 11 december. Nollvision cancers Ebba Hallersjö Hult deltog, tillsammans med Karin Elinder från Cancerfonden.

Försenad diagnostik, uppskjuten screening och uppskjuten behandling – pandemin ställer oss inför flera utmaningar. Det, och andra utmaningar för cancervården, diskuterade experter från offentlig och privat sektor i Indien och Sverige, i Sweden–India Health Talks som en del av Sweden–India Nobel memorial week.

Rundabordssamtalet fokuserade på att identifiera cancerrelaterade utmaningar och hur pandemin kräver mer än innovation i lösningarna. De mest kritiska hindren i vårdkejdan identifierades som screening och tidig upptäckt, socioekonomiska skillnader, brist på kunskap om cancer och cancerprevention bland befolkningen samt ojämlik tillgång till vård. För att hitta vägar förbi dessa hinder delade vi erfarenheter, best practice och nytänkande förslag. Samarbete är centralt för att hitta en hävstångseffekt i den teknologiska utvecklingen och för att arbeta tvärfunktionellt, såväl kring den enskilda patientens vård som i att utveckla preventionsarbete genom till exempel beteendevetenskap. Tillsammans jobbar vi för en bättre global cancervård!

Läs mer om India–Sweden Healthcare Innovation Centre.

Hur ser vi cancern snabbare?

Ju tidigare cancer upptäcks, desto större är chanserna att överleva. Med nya system och kunskaper kan vi fånga upp symptom tidigare och snabbare komma till behandling. Och får större chanser att nå nollvisionen.

Tidig upptäckt och diagnos
Följ länk

Har du idéer som kan förbättra cancervården?

Vi vill gärna att fler aktörer engagerar sig Nollvision cancer, genom samarbeten i specifika insatser och genom partnerskap. Tillsammans kan vi skapa ännu större nytta för patient och samhälle.

Engagera dig
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